Shouting from far away

Rare Dementia Support member, Rory Barnes has compiled an anthology of his poetry, written out of personal experience living with primary progressive nonfluent aphasia. The poems provide a window on this illness ‘from the inside’.  In Rory's words;

'I marvel at poetry’s ability to say things in more detail and meaning, and to communicate on so many levels, than prose, and in fewer words. It’s a mysterious thing that comes down upon my head unbidden.

I have told my PPA story in twenty three pages of prose and over one hundred poems. I am still adding to the collection.

How many poets have PPA? I have advanced symptoms but have retained my intellect. This is very rare and allows me to tell an inside story. Inside indeed. I believe that every patient has an internal life of some sort.'

All proceeds from book sales raise funds for Rare Dementia Support.